2025 Virtual RUNX1 Patient Meeting: “Navigating New Frontiers”

Friday, September 19th
9:00 a.m. PDT • 12:00 p.m. EDT • 5:00 p.m. BST

RRP’s RUNX1 Patient Meeting is designed to support, inform, and connect individuals and families affected by RUNX1-FPD.

This year’s virtual gathering will provide the latest updates on RUNX1-FPD research and clinical trial progress, shared in a clear and accessible way for our patient and family community. We also aim to offer opportunities for sharing personal stories and peer support, as well as practical strategies for managing uncertainty.

Whether you're newly diagnosed, caring for a loved one, or seeking connection with others on a similar journey, we invite you to join us for a meaningful day of shared experiences, learning, and support.

A complete agenda will be available soon! Please click the button below to register: