This is one of four topics included in Research Guided by Patients Initiative training program developed with and for RUNX1-FPD stakeholders.

The goal of this self study video is to offer a basic understanding of what Patient Centered Outcomes Research is for RUNX1-FPD stakeholders including patients, family members, researchers, and clinicians.

After watching the video, stakeholders should be ready to dive into discussion of how they play a role in developing PCOR for RUNX1-FPD (as in Topic 4).

The materials was developed and presented by consultants from the National Health Council.