Join The First Research Guided By Patients Committee Meeting of 2025!

The Research Guided by Patients Committee (RGPC) consists of patients, family members, caregivers, researchers, and clinicians focused on including diverse RUNX1-FPD patients’ perspectives and preferences with respect to research, education, advocacy, and awareness initiatives for the RUNX1-FPD community. 

Patients and family members are always welcome to join RGPC meetings, and the group is always open to new members!

There’s no need to register—just click here to join the meeting directly on January 28th at the scheduled time.

If you have an interest in learning more about the RGPC and how to get involved, please contact Amanda Eggen.