New RUNX1-FPD Patient & Family Coffee Chat

This event is focused on welcoming and connecting to our newest community members. So if you found RRP in the last year, please join to introduce yourself to the group and share your story (if you are comfortable doing so).

For those more familiar with RRP, please come and connect with our new members and share your personal experience as a RUNX1-FPD patient and/or caregiver, as well as one positive thing being a member of this group has provided for you.

All you will need is a computer, tablet, or phone with a camera and microphone, and an internet connection (coffee is optional!).

After you register, Amanda Eggen will email you with more details ahead of the event. If you have any questions, please email Amanda at aeggen@runx1-fpd.org.