CONTACT INFORMATION UPDATE

Please fill out the form below to complete your profile. Maintaining accurate demographic information in our database is vital for several reasons:

  1. When we seek grants and funding, potential supporters often request information such as where the majority of our patients reside to gain a deeper understanding of the population we serve. By providing up-to-date information, you help us showcase the significance of our community.

  2. Your updated details enable us to demonstrate to government leaders just how global and influential our community truly is as we expand our efforts into health policy advocacy

We assure you that your personal information is handled with the utmost care and respect. We do not share your specific addresses or names; we only aggregate information such as the number of patients who live in a certain region or the percentage of patients from each country we serve. Please see our Privacy Policy for more details.

Thank you for your assistance!